Podcast Episode 13: Chronically Candid with Jay Trivedi and Nico Meyering
In Episode 13 of Diversability Amplified, Jay Trivedi and Nico Meyering join host Marie Dagenais-Lewis for a Chronically Candid conversation surrounding their lives with Congenital Central Hypoventilation Syndrome (CCHS).
“I pay $200 a month for my ventilator, which is, to be frank, $200 a month for the privilege of staying alive. And this should not happen.”
A little about our guests…
Nico Meyering, MPA is a Disabled advocate who manages social impact projects. Working with friends and organizations like the CCHS Family Network, the Diversability Leadership Collective, the National Disability Mentoring Coalition and others, he has launched and guided several projects from vision to victory.
A two-term AmeriCorps alumnus, Nico currently serves as the co-chair for the Philadelphia AmeriCorps Alumni chapter board. He was inducted into the National Disability Mentoring Hall of Fame in 2021. He endowed the Frazier Fund which benefits other Disabled advocates. He hosts a weekly podcast about being a Disabled nerd and has spoken at pop culture conventions nationwide.
He is a former board member of the CCHS Family Network, Buffalo Street Books, and Literacy Volunteers of Otsego and Delaware Counties. Find Nico on Instagram @namestartswithn
“I think there needs to be more CCHS knowledge in a medical community and more research needs to be done.”
Jay Trivedi was diagnosed at birth with respiratory disability called Congenital Central Hypoventilation Syndrome (CCHS). His highest education is bachelors of science in business administration and finance. He has worked in community college environment and currently works in retail. He loves being involved in CCHS community as well as the Disability community. Find Jay on Instagram @jt.trivedi